This House resolution raises awareness about chordoma, a rare bone cancer that affects the skull and spine. The resolution notes chordoma is slow growing but can be aggressive, affects people of all ages, and that about 300 people in the United States are diagnosed each year. It says chordomas are hard to treat because they often involve critical structures like the brain stem and spinal cord. The resolution states there are no drugs known to cure or effectively control chordoma and that recurrence after surgery or radiation is common. It calls for increased funding and support for accurate early diagnosis, development of new treatments and diagnostics, fewer hurdles between research and treatments, and patient-centered approaches to drug discovery and development.
The text is a "sense of the House" resolution, so it expresses the House's views but does not by itself change law or directly appropriate money. It was introduced on February 25, 2026, sponsored by Representatives Henry Johnson and Paul Tonko, and referred to the House Committee on Energy and Commerce. If the resolution gains attention, it could encourage more focus on research, diagnosis, and patient support for chordoma, but any new funding or programs would require separate legislation or appropriations.
No publicly available information.
Supporters say chordoma patients and families need increased funding and support for: accurate and early diagnosis; development of new treatments, diagnostics, and cures; removing hurdles between research and new treatments; and patient-centered drug discovery and development.
No publicly available information.